Resources
This page provides links to relevant publications. In particular, the project leaders are focused on private and sensitive data in health science and medical libraries, archives and special collections in the United States. Some of the links below provide additional resources outside of that context.
This page, and the Access Policies section in particular, will expand over the course of the project as we gather use cases.
Private and Sensitive Data in Libraries, Archives and Special Collections
Privacy and Confidentiality Bibliography, Society of American Archivists. http://privacybiblio.pbworks.com/w/page/18593383/FrontPage (accessed September 2019)
Issue Brief: Confidentiality of Private Information Held in Records of the Federal Government’s Executive Agencies, Society of American Archivists. https://www2.archivists.org/statements/issue-brief-confidentiality-of-private-information-held-in-records-of-the-federal-governm (February 2017)
PII Considerations in Screening Archival Records, NARA. https://www.archives.gov/files/Before-Screening-Records.pdf (accessed September 2019)
Ethics in Archives: How Special Collections Protects Your Privacy, NC State University Libraries, Taylor de Klerk and Jessica Serrao. https://www.lib.ncsu.edu/news/special-collections/ethics-in-archives%3A-how-special-collections-protects-your-privacy (July 20, 2017)
(2013) Security Without Obscurity: Managing Personally Identifiable Information in Born-Digital Archives, Library & Archival Security, 26:1-2, 37-55, DOI: 10.1080/01960075.2014.913966. https://scholarsphere.psu.edu/downloads/pnv9353523 (accessed September 2019)
Access policies:
- Access to Records, Archives of the University of Notre Dame. http://archives.nd.edu/about/accesspolicy.pdf
Access Policy For University Archives Collections, Princeton University Library, The Department of Rare Books and Special Collections. https://rbsc.princeton.edu/policies/access-policy-university-archives-collections
- Smithsonian Collections Access Policies. https://siarchives.si.edu/what-we-do/collections-access-policies
DPC Sensitive Data. (2019). Retrieved November 2019, from dpconline: https://www.dpconline.org/our-work/bit-list/sensitive-data
Distributed Digital Preservation
A Guide to Distributed Digital Preservation, 2010; Atlanta, Georgia. eds Katherine Skinner and Matt Schultz (https://digital.library.unt.edu/ark:/67531/metadc12850/: accessed September 10, 2019), University of North Texas Libraries, Digital Library, https://digital.library.unt.edu and https://metaarchive.org/wp-content/uploads/2017/03/A_Guide_to_Distributed_Digital_Preservation_0.pdf
Walters, T., Bishoff, L., Gore, E. B, Jordan, M., & Wilson, T. C. (2009). Distributed Digital Preservation: Technical, Sustainability, and Organizational Developments. UC Office of the President: California Digital Library. Retrieved from https://escholarship.org/uc/item/38g232wc
Minor, D., Sutton, D., Kozbial, A., Burek, M., & Smorul, M. (2009). Chronopolis: Preserving our Digital Heritage. UC Office of the President: California Digital Library. Retrieved from https://escholarship.org/uc/item/0t2075qc
The Dark Side of Digital Preservation: Distributed Digital Preservation Sibyl Schaefer, Mary Molinaro, Katherine Skinner, Chip German, David Pcolar Sam Meister Archives Records 2016 Session 606 Saturday August 6, 2016 Atlanta, Georgia. https://www.slideshare.net/Educopia/the-dark-side-of-digital-preservation-distributed-digital-preservation (accessed September 2019)
Trehub, Aaron & Halbert, Martin. (2012). Safety in Numbers: Distributed Digital Preservation Networks. https://www.ifla.org/past-wlic/2012/216-trehub-en.pdf (accessed September 2019)
The consultative committee for space data systems. Reference model for an open archival information system (OAIS), 2012; Washington, DC. https://public.ccsds.org/pubs/650x0m2.pdf (accessed September 2019)
One to Many: Connecting Local Repository Systems with Distributed Digital Preservation Systems. Sibyl Schaefer, Bill Branan. October 2019. . https://osf.io/apxk6/. (accessed November 2019)
Digital Preservation Cost Models
The 4C Project: Collaboration to Clarify the Costs of Curation (2015). http://www.4cproject.eu/ (accessed September 2019)
Data Classifications
UT Information Classification: https://security.utexas.edu/policies/data_classification
UCSD Data Classification:
https://security.ucop.edu/policies/institutional-information-and-it-resource-classification.html
https://security.ucop.edu/files/documents/uc-protection-level-classification-guide.pdf